Why I decided to create this website has to do with the fact that many times I was frustrated with MRSA. It was hard to find a place where I could talk about what was happening to me. People have very little information about MRSA.
I have been having lots of problems with my infection the last several weeks. Many people think that once you have been treated for an infection, the infection is gone. This is not true with MRSA. Anytime I get a little run down or stressed over something, I have a flare up of the MRSA infection. In my case that means more IV antibiotics. This is why I feel so strongly about finding away to stop the spread of the infection.
My husband and I had planned to go away for a few days this week. Again MRSA put a stop to our plans. Now I can administer my own IVs, so this should not be a problem. Well, guess again. Because I turned 65 in March, I now must go to an out patient facility for my IV meds. For me that means driving 58 miles round trip to get a medication I have been administrating myself for five years. Also, the total drug cost has gone up because now we are paying someone at a costly out patient facility to do something I am very able to do for myself. This is not even considering the fact that I am now exposed to more germs in a facility which treats all kinds of things. Everyone should know you are safer and less likely to get something else in you own home. Again, the patient's input is ignored. My ability and willingness to administer my own medication is completely ignored. Because of this "rule", my whole life is turned upside down. I strongly believe it will take me longer to recover from this bout of MRSA because I am not in control of my treatment. As patient advocates, we need to use our voices to change these type of situations. Our treatment should never be determined by your age. Every patient should be treated as an individual. How cost effect is my treatment this week? It is costly both financially and emotionally. It is hard to be treated like your abilities do not count. The only thing that mattered this week is the Medicare rules. Rosie's Dream was not happening because the world of MRSA just got harder to live in.
I have been having lots of problems with my infection the last several weeks. Many people think that once you have been treated for an infection, the infection is gone. This is not true with MRSA. Anytime I get a little run down or stressed over something, I have a flare up of the MRSA infection. In my case that means more IV antibiotics. This is why I feel so strongly about finding away to stop the spread of the infection.
My husband and I had planned to go away for a few days this week. Again MRSA put a stop to our plans. Now I can administer my own IVs, so this should not be a problem. Well, guess again. Because I turned 65 in March, I now must go to an out patient facility for my IV meds. For me that means driving 58 miles round trip to get a medication I have been administrating myself for five years. Also, the total drug cost has gone up because now we are paying someone at a costly out patient facility to do something I am very able to do for myself. This is not even considering the fact that I am now exposed to more germs in a facility which treats all kinds of things. Everyone should know you are safer and less likely to get something else in you own home. Again, the patient's input is ignored. My ability and willingness to administer my own medication is completely ignored. Because of this "rule", my whole life is turned upside down. I strongly believe it will take me longer to recover from this bout of MRSA because I am not in control of my treatment. As patient advocates, we need to use our voices to change these type of situations. Our treatment should never be determined by your age. Every patient should be treated as an individual. How cost effect is my treatment this week? It is costly both financially and emotionally. It is hard to be treated like your abilities do not count. The only thing that mattered this week is the Medicare rules. Rosie's Dream was not happening because the world of MRSA just got harder to live in.
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